am I broken?

@#^%^&^%$%&^%&#$%@#&#

pretty much sums up the current state of activity going on inside my noggin.

Soooo I was supposed to run a 5k 2 weekends ago, remember that?

yeah, me too... how could I ever forget staying up until midnight working on my tutu that would have completed my totally awesome Wonder Woman costume. To run in. Cause I'm a bad ass.

Welp, didn't happen folks... I woke up bright and early Saturday morning with a fever and a head cold and my body told me I wasn't going anywhere but bed. At the time I was super bummed but the next few days reminded me that only God sees the biggest picture and even though I may not always like the road He pushes me down... HE knows what is best for me.

Monday October 22, 2012

I go to the doctor.

I NEVERRRRR go to the doctor.

like ever (Taylor Swift style).

I went to the doctor for one particular non life threatening relatively minor thing and come out of my appointment in.... i don't even know what. I felt dazed, heavy, kind of like I wasn't actually present in my own life. Like I was watching in from outside, weird i know.

I've never had any health issues... My medical record probably reads something like:

birth
cold
cold
ER visit to remove nose ring (yeahhhhh don't ask)
cold
gave birth

prettyyyyyyyyy simple stuff. and now this...

I get an EKG, I have to get labs, then I go get a chest Xray, then I'm scheduled for a ECHO (heart ultrasound), and I need to get a heart monitor put on.

Marfan syndrome is a disorder of the connective tissue.  Connective tissue holds all parts of the body together and helps control how the body grows.  Because connective tissue is found throughout the body, Marfan syndrome features can occur in many different parts of the body. 

Marfan syndrome features are most often found in the heart, blood vessels, bones, joints, and eyes. Sometimes the lungs and skin are also affected.  Marfan syndrome does not affect intelligence.   

About 1 in 5,000 people have Marfan syndrome. This includes men and women of all races and ethnic groups.

What are the features of Marfan syndrome?Because connective tissue is found throughout the entire body, the disorder manifests itself in many body systems. The most common features are:

• Tall stature - affected people are usually, but not always, taller than other people in their family
• Arms, legs, fingers and toes are disproportionately long, as compared to the trunk
• Loose-jointedness
• Indented or protruding chest bone
• Scoliosis
• Flat feet
• Nearsighteness
• Dislocated lens

What is the most dangerous part of Marfan syndrome?

There is no cure. People with Marfan syndrome are at risk of aortic enlargement. Without proper management, i.e., drug therapy and lifestyle modifications, the aorta (the large blood vessel that carries blood away from the heart) is prone to enlarge and could dissect (tear) or rupture. An aortic rupture is usually fatal.

This is NOT what I have been diagnosed with yet... but it IS what my Doctor thinks I have. I had my ECHO yesterday and as soon as she reads it she will let me know if I have this or not. If I do have this, it's not a death sentence... I can live a pretty normal life. I just have to go to the cardiologist regularly as my aortic valve could rip at any time & I would be at a high risk for aneurysms. No more running tho.

I feel so uncomfortable asking for prayers for myself, so I will ask for prayers for Landon. He needs his Momma. 

With Love,

Leia & Landon

P.S. totally gonna be rockin' the weird blue jelly heart monitor on my birthday next week. par-tay.

Rockin It... Like a boss.

"you suck at life"

Weird Wednesday Randomness

This post is not going to make sense as a WHOLE to a lot of you, but to a few of you random parts will make absolute perfect sense. Consider yourself lucky (:

This post is totally stupid and pointless and if you don't understand you'll think I'm an idiot... but if you do, I'll have made you smile... or laugh. you're welcome. i love you.

ONE
Firstly, If you have a child that you don't take care of, don't help financially, and don't make an active effort to see... you suck at life. (period).

TWO
"how's the married life?"
"It's great, she's never around"
Love you for that. No really, Love you.

THREE
I am running my first 5k on Saturday, whoop whoop! Not exactly as I originally planned because someone decided that they didn't want to see their child this weekend and therefore mommy will be running with a jogging stroller full of cute cuddly Landon awesomeness. He will get to play in the fun kiddie after-race festivities and I get to keep my little boo all weekend. Win Win my friend... you only THOUGHT you were punishing me.
P.S. letting me keep my child on your weekend will never be a punishment, so keep on punishing bruh.

FOUR
There's a snake in my boot.

FIVE
I have a birthday coming up in 3 weeks. Kinda cool, just sayin... in case you were wanting to get me a fab watch or something. hint. hint.

SIX
Sooooo this happened....

& this happened....

& then this happened....

SEVEN

"I can't even handle you right now"

EIGHT
I am the proud cousin of a brand spankin' new baby boy. He's kinda perfect. He is already a rockstar. I'm super in love. We clearly have amazing genes in this fam. real talk.

NINE
"will you dance with me"
"ummm, no"
"why not"
::points at hands::
"If he's got an M on his hands, he's too young for you bro"

TEN
Is it CHRISTMAS yet?!

With love,
Leia & Landon

Tie Dye For!

2.5 weeks...

TWO AND A HALF WEEKS

In a VERY short 2 1/2 weeks I will be running my first evahhhhh 5k. I've never ran more than a mile consecutively in my LIFEEEE. It should be noted that it was pure hell. 8th grade torture.

I'm starting to wonder if I am really going to be able to run the whole thing. I mean I CAN walk if I just can't do it any more... they aren't going to set me on fire or anything. I just WANT to run the whole thing. I do what I want....

I have also picked my next race and am trying to get a team together! Its the Color Me Rad 5K in Austin, TX and it is going to be TOTALLY RAD! You wear ALL white and by the end of the run you are totally tie-dyed from your head to your feet. Fun. Stellar amounts of FUN. We have 4 people SO FAR (I know all of you are going to join us!) and our team name is TIE-DYE FOR, super clever... Im aware (:

Please Note: YOU DO NOT HAVE TO RUN THIS RACE. Walkers are totes welcome... but the bottom line is this. You have these color packs that you get to throw and its WAY more fun to peg your friends with color bombs then it is to tie-dye perfect strangers. duh.

The race is December 8th so you have plenty of time to let the fun marinate in your brain. do it. It'll be to tie-dye for!

Our life has been SO BUSY lately. With trips to Austin on the weekends and work and school and lifeeeeeeeee. Cray.

I HAVE NOT BEEN FOLLOWING MY TRAINING PLAN. Fail. I am gonna have to get busy in the next few weeks or look like a total foolface on race day. serious face.

With Love,

Leia & Landon

P.S. In case I haven't convinced you yet....